It's a joy today to welcome back Kirsty Shires to Bedside Reading. Kirsty and I first connected last year over Michael Rosen's Many Different Kinds of Love and she emailed me a few weeks ago to tell me about a book that she thought I ought to read which actually I had read before many years ago! I've absolutely loved coming back to it. Anne Fadiman's The Spirit Catches You and You Fall Down is the story of a Hmong refugee family and their daughter Lia set in California in the early nineties and some of the culture clash and culture shock that exists between their understanding of their daughter's condition, epilepsy, which in their language means "the spirit catches you and you fall down" and her American doctors. It is a phenomenal read. It was wonderful to talk to Kirsty today about some of the themes from it and what we've both learned and what we've changed in our practice as a result of having read it.
One of the really big practice changing aspects for us both was discovering Arthur Klienman's eight questions which Kirsty decribes as "like ICE on steroids" and which make a HUGE difference in practice when used appropriately:
https://thinkculturalhealth.hhs.gov/assets/pdfs/resource-library/arthur-kleinmans-eight-questions.pdf
Kirsty also recommended A Smell of Burning by Colin Grant
https://www.theguardian.com/books/2016/aug/19/a-smell-of-burning-the-story-of-epilepsy-colin-grant-review